HARRY Salm, now eight, was five when he started experiencing occasional vomiting, neck pain, and brief moments of imbalance.
His parents said doctors dismissed his symptoms for a school bug.
But in February 2022, his symptoms worsened after his teacher found him “temporarily paralysed” when he sat down in the reading corner.
Harry, from Huddersfield, was immediately rushed to A&E and after multiple hospital transfers, a CT scan later revealed the “devastating” news that he had a brain tumour.
He was diagnosed with medulloblastoma – a high-grade cancerous tumour that starts near your brain stem in your cerebellum and is more common in children than adults.
Harry underwent a 13-hour emergency surgery that saw the 4cm growth successfully removed.
But now the schoolboy faces a second battle with post-op complications and treatments.
His mum, Vicki, 40, a social care manager for a housing provider, said: “This experience has changed our lives forever.
“Harry was just five when his teacher phoned, saying he had sat down in the reading corner and suddenly couldn't move.
“It was terrifying, as I was recovering from a C-section, so my husband, Andy, rushed to pick him up.
“By the time he arrived, Harry seemed fine again, but we knew something wasn't right.”
Vicki had recently given birth to newborn Millie – and was recovering – when Harry was suddenly found temporarily paralysed.
She said: “Andy took him to A&E and after multiple dismissals of his symptoms and hospital transfers, a doctor finally ordered a CT scan with devastating results.”
Harry was diagnosed with a brain tumour, aged five, on February 8, 2022 – the same day he was found paralysed at school.
Vicki said: “Andy had to hear those words alone and then call me to break the news before a friend rushed me to the hospital with newborn Millie in my arms.
“Our world turned upside down in an instant.
“We made the decision for Harry to have surgery, and eight hours later, we watched them wheel our little boy into the theatre.”
Harry underwent a 13-hour surgery, during which neurosurgeons successfully removed a 4cm tumour – the size of a walnut.
Our world turned upside down in an instant
Vicki Salm
The survival rate of medulloblastoma is usually good – on average 70 to 80 per cent of children diagnosed live for five years or more.
However, this can decline to around 60 per cent for children with high-risk medulloblastoma.
Following surgery, Harry underwent 31 rounds of proton beam therapy in Germany, and several months of chemotherapy at Leeds Children's Hospital.
Vicki said: “Chemotherapy was incredibly hard for Harry.
“Sickness was a major challenge [and] at one point, his body wasn't responding to medication as expected, and uncontrollable vomiting left doctors confused.
“He was frequently admitted to hospital, and discussions began about feeding via the bloodstream or PEG feeds, as he couldn't tolerate water or food.
“A clinical pharmacist eventually discovered that his crushed tablets weren't being properly absorbed through his feeding tube.
“Once that was corrected, his condition improved. I couldn't be more grateful to that pharmacist.”
Post-op complications
The cancer is currently kept at bay – but now Harry faces a second battle with post-op complications and treatments.
He developed posterior fossa syndrome – a neurological condition which affected his abilities to walk, talk, and swallow.
Harry faced months of recovery with hospital staff to relearn these skills but his mum said that “he never lost his sense of humour or imagination”.
She said: “Harry endured so much: sickness, weakness, and constant hospital stays.
“He called his tumour ‘the goblin' and told us he was fighting it like a superhero.
“That strength carried us all through the darkest days.”
He called his tumour ‘the goblin' and told us he was fighting it like a superhero
Vicki Salm
As Harry continues his recovery, Vicki will be taking on the six-day Sahara Trek challenge to raise vital funds for Brain Tumour Research.
She will begin the 50km walk on March 27, 2025 – and will be joined by 15 others who share similar experiences with their loved ones.
It will test participants with extreme heat, towering sand dunes, and long, gruelling days without beds or running water.
“No child should have to go through what he has,” Vicki said.
“That's why I am taking on this challenge – to raise funds for life-saving research.
“Brain tumour treatments have remained largely unchanged for decades, and they were never designed for children.
“We need more funding, more awareness, and more action. I am doing this for Harry and for all the families who are facing this battle.”
Carol Robertson, National Events Manager at Brain Tumour Research, said: “We are incredibly grateful to Vicki for taking on this gruelling challenge to help raise vital funds and awareness.
“Her strength and determination, inspired by Harry's bravery, are truly inspiring.
“Brain tumours are indiscriminate; they can affect anyone at any age.
“Tragically, they kill more children and adults under 40 than any other cancer, yet research into this disease remains severely underfunded.
“With the support of fundraisers like Vicki, we can push for the investment needed to improve treatments and, ultimately, find a cure.”
To support Vicki click here.
The most common symptoms of a brain tumour
More than 12,000 Brits are diagnosed with a primary brain tumour every year — of which around half are cancerous — with 5,300 losing their lives.
The disease is the most deadly cancer in children and adults aged under 40, according to the Brain Tumour Charity.
Brain tumours reduce life expectancies by an average of 27 years, with just 12 per cent of adults surviving five years after diagnosis.
There are two main types, with non-cancerous benign tumours growing more slowly and being less likely to return after treatment.
Cancerous malignant brain tumours can either start in the brain or spread there from elsewhere in the body and are more likely to return.
Brain tumours can cause headaches, seizures, nausea, vomiting and memory problems, according to the NHS.
They can also lead to changes in personality weakness or paralysis on one side of the problem and problems with speech or vision.
The nine most common symptoms are:
- Headaches
- Seizures
- Feeling sick
- Being sick
- Memory problems
- Change in personality
- Weakness or paralysis on one side of the body
- Vision problems
- Speech problems
If you are suffering any of these symptoms, particularly aheadache that feels differentfrom the ones you normally get, you should visit your GP.
Source: NHS
