Select theme:

Search

Newsletter image

Subscribe to the Newsletter

Join 10k+ people to get notified about new posts, news and tips.

Do not worry we don't spam!

GDPR Compliance

We use cookies to ensure you get the best experience on our website. By continuing to use our site, you accept our use of cookies, Privacy Policy, and Terms of Service.

  • Home
  • Health
  • Tragedy as 12-day-old baby dies from little-known condition leaving parents devastated

Tragedy as 12-day-old baby dies from little-known condition leaving parents devastated

Published on April 06, 2025 at 07:10 AM

Tragedy as 12-day-old baby dies from little-known condition leaving parents devastated

A 12-DAY-OLD baby has died from a rare condition leaving devastated parents distraught.

Willow-Grace Dickinson died on April 1 when she was just 12 days old at Merthyr hospital, Wales.

Just five days after she was born young Willow-Grace was diagnosed with non-ketotic hyperglycinemia – a rare, inherited metabolic disorder.

Parents and sibling with their newborn baby in the hospital.
A newborn baby tragically died at 12 days old
Sleeping newborn baby wearing a pink hat and outfit.
Willow-Grace Dickinso was diagnosed with non-ketotic hyperglycinemia

The condition only affects one in 760,000 worldwide and Willow-Grace's mum Sophie Wheaton and dad Jayden Dickinson said they “never expected” it.

Sophie said: “It's something we never expected – especially as it was not known about.

“I had her on March 20 and from birth she was never right.

“She never cried, she never had any movement, didn't open her eyes. Her breathing – she was holding her breath and breathing really fast.”

The doctors told Sophie her baby was fine and was behaving normally but on March 24 she stopped eating.

Once she was rushed back to hospital she was put on drips and a tube to treat an infection but the day they were doing all blood works on her, CT scans, lumbar puncture.

A few days later she had an MRI scan and Sophie was told that baby Willow-Grace had a non-treatable disease – non-ketotic hyperglycinemia.

Only two hospitals in the UK deal with the rare condition and the doctors had to refer to a hospital in Birmingham to confirm it.

Her disbelieved parents were shocked that there was nothing that could treat it and that their baby girl couldn't be saved.

After receiving the heartbreaking on March 26, the the family was told that as soon as medical tubes were removed from her she would die within the hour.

Remarkably, she lasted five days, before passing away on April 1.

  • Share:
Super Admin

Super Admin

Attacks on Plateau communities unacceptable – NSGF
Prev Article

Attacks on Plateau communities unacceptable – NSGF

Next Article

From a romp hole in her jumpsuit for quick bonks, to gunplay and ‘BLOOD’ – inside Megan Fox’s sex confessions

From a romp hole in her jumpsuit for quick bonks, to gunplay and ‘BLOOD’ – inside Megan Fox’s sex confessions

Related to this topic:

Comments (0):

Be the first to write a comment.

Post Comment

Your email address will not be published. Required fields are marked *